6 Comments

Emily, thanks for bringing this issue to light. Particularly highlighting on your footnotes: "The minority of black women who are diagnosed with endometriosis are diagnosed on average two and a half years later than white women." There's definitely a broken understanding of what's going on and your insights here helps direct the eyes to what's important.

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Thanks Thalia, the health disparities are so huge for Black women compared to white women, Jodie really wanted to communicate that

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Definitely an important topic that doesn't get discussed enough, Emily.

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This is a great perspective on grief. I think hysterectomy is over simplified, we don’t go around talking about castrating men so casually. It’s invasive and an individual’s private decision to have one, or not!

It’s also so important to raise black endo voices as you state at the bottom, their outcomes are so much worse than white women. Thank you for sharing.

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Thanks so much for your thoughtful comment, Sheila. I loved how Jodie let us into her thoughts and anticipatory grief around her potential hysterectomy -- as you say, it's a big and complex decision. And yes, I believe that chronic illness in general is coded very white, to everyone's detriment, so it's important to me that GriefSick gives a lot of space to Black people's and people of colour's stories

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I really appreciate these thoughts being shared as it can feel quite isolating being confronted with that option and it bringing up complex emotions.

My knowledge is mostly around endo, but I can only imagine how it is with other chronic illness. Medicine is written by white men, leaving black women the most discriminated 😔

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